What is trigeminal neuralgia?

Trigeminal neuralgia is a facial pain syndrome due to a disorder of the 5th cranial nerve. It is characterized by some combination of sharp, stabbing, intense facial pain.

How do members experience trigeminal neuralgia?

Top 5 symptoms reported by people with trigeminal neuralgia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for trigeminal neuralgia*

*Data from patients with trigeminal neuralgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with trigeminal neuralgia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Tegretol)
Perceived effectiveness
for trigeminal neuralgia (1 evaluation)
Side effects
drowsiness nausea
Total evaluations
1
Tried for
trigeminal neuralgia (7)
Treatment

(Mylan-Baclofen)
Perceived effectiveness
for trigeminal neuralgia (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
trigeminal neuralgia (4)

*Data from patients with trigeminal neuralgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has trigeminal neuralgia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 20
30s 85
40s 229
50s 342
60s 332
70+ 204

Distribution of sex

Sex

Sex Proportion # of patients
Male 179
Female 1,027

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What is trigeminal neuralgia?

Trigeminal neuralgia is a facial pain syndrome due to a disorder of the 5th cranial nerve. It is characterized by some combination of sharp, stabbing, intense facial pain.



Common symptoms reported by people with trigeminal neuralgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for trigeminal neuralgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
367
Tried for
trigeminal neuralgia (7)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
233
Tried for
trigeminal neuralgia (4)

Data from patients with trigeminal neuralgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with trigeminal neuralgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tegretol)
Perceived effectiveness
for trigeminal neuralgia (1 evaluation)
Side effects
drowsiness nausea
Total evaluations
1
Tried for
trigeminal neuralgia (7)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for trigeminal neuralgia (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
trigeminal neuralgia (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with trigeminal neuralgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has trigeminal neuralgia on PatientsLikeMe?

  • 2 new patients joined this month
  • 588 say trigeminal neuralgia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 20
30s 85
40s 229
50s 342
60s 332
70+ 204
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 84
30-39 years 135
40-49 years 130
50-59 years 92
60-69 years 20
70+ years 7

Distribution of sex

Sex
Sex Proportion # of patients
Male 179
Female 1,027

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 563
Not Diagnosed 31

These charts show data from trigeminal neuralgia patients who have completed their condition history
Last updated: