What is granulomatosis with polyangiitis (Wegener's)?

Granulomatosis with Polyangiitis (Wegener's) is a rare automimmune disorder that causes inflammation of small and medium sized blood vessels (vasculitis) primarily in the lungs and kidneys.

How do members experience granulomatosis with polyangiitis (Wegener's)?

Top 5 symptoms reported by people with granulomatosis with polyangiitis (Wegener's)*

Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Wheelchair (manual)
Common symptom
Shortness of breath with exertion
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Amitriptyline Gabapentin Handicap/Disability Parking Permit
Common symptom
Depressed mood
How bad it is
What people are taking for it
Bupropion Sertraline

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for granulomatosis with polyangiitis (Wegener's)*

Treatment
Type
How many have tried
Tried for
Treatment

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
104
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment

(Cytoxan)
Type
Prescription Drug
How many have tried
52
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Folic Acid Prescription)
Type
Supplement
How many have tried
44
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
51
Tried for
granulomatosis with polyangiitis (Wegener's) (1)

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with granulomatosis with polyangiitis (Wegener's)*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment

(Cytoxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Folic Acid Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has granulomatosis with polyangiitis (Wegener's) on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 8
30s 21
40s 29
50s 34
60s 45
70+ 38

Distribution of sex

Sex

Sex Proportion # of patients
Male 50
Female 123

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What is granulomatosis with polyangiitis (Wegener's)?

Granulomatosis with Polyangiitis (Wegener's) is a rare automimmune disorder that causes inflammation of small and medium sized blood vessels (vasculitis) primarily in the lungs and kidneys.



Common symptoms reported by people with granulomatosis with polyangiitis (Wegener's)

Common symptoms
How bad it is
What people are taking for it
Common symptom
How bad it is
What people are taking for it
Wheelchair (manual)
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
How bad it is
What people are taking for it
Amitriptyline Gabapentin Handicap/Disability Parking Permit
Common symptom
How bad it is
What people are taking for it
Bupropion Sertraline
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for granulomatosis with polyangiitis (Wegener's)

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
104
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
52
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment name(s)

(Folic Acid Prescription)
Type
Supplement
How many have tried
44
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
51
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with granulomatosis with polyangiitis (Wegener's)

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment name(s)

(Cytoxan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment name(s)

(Folic Acid Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None
Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has granulomatosis with polyangiitis (Wegener's) on PatientsLikeMe?

  • 0 new patients joined this month
  • 137 say granulomatosis with polyangiitis (Wegener's) is their primary condition
Age
Age Proportion # of patients
<20 1
20s 8
30s 21
40s 29
50s 34
60s 45
70+ 38
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 9
30-39 years 8
40-49 years 10
50-59 years 8
60-69 years 3
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 50
Female 123
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 64
Not Diagnosed 2
These charts show data from granulomatosis with polyangiitis (Wegener's) patients who have completed their condition history
Last updated: