What is Wilson disease?

Wilson's disease is an autosomal recessive genetic disorder characterized by copper accumulation leading to neurological or psychiatric symptoms and liver disease.

How do members experience Wilson disease?

Top 5 symptoms reported by people with Wilson disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Wilson disease*

*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with Wilson disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Syprine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Wilson disease (1)

*Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has Wilson disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 12
30s 16
40s 13
50s 11
60s 9
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 27
Female 30

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What is Wilson disease?

Wilson's disease is an autosomal recessive genetic disorder characterized by copper accumulation leading to neurological or psychiatric symptoms and liver disease.



Common symptoms reported by people with Wilson disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Wilson disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Syprine)
Type
Prescription Drug
How many have tried
9
Tried for
Wilson disease (1)

Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:


Compare treatments taken by people with Wilson disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Syprine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Wilson disease (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Wilson disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:



Who has Wilson disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 53 say Wilson disease is their primary condition

Age
Age Proportion # of patients
<20 1
20s 12
30s 16
40s 13
50s 11
60s 9
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 2
30-39 years 2
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 27
Female 30

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 1

These charts show data from Wilson disease patients who have completed their condition history
Last updated: